Neuroendocrine Neoplasms (tumours and cancers)

What are Neuroendocrine Neoplasms?

The term Neuroendocrine Neoplasm (NEN) refers to both Neuroendocrine Tumours (NETs) and Neuroendocrine Cancers (NECs). NETs are relatively slow-growing tumours that can occur almost anywhere in the body, but most commonly in the GI tract and lung. Approximately 30% of NETs produce abnormal chemicals which can cause symptoms such as diarrhoea, flushing, itching and, less commonly, wheezing and shortness of breath. This is called Carcinoid Syndrome.

NECs are faster-growing tumours which are more aggressive and behave in a similar way to most other types of cancer.
For more information on NENs please refer to www.neuroendocrinecancer.org.uk

How are Neuroendocrine Neoplasms treated?

The most common treatments for NENs are surgery, chemotherapy, radiotherapy and hormonal therapy. The type of treatment you receive will depend on your individual circumstances. Your consultant will discuss your treatment options with you.

You can find a good explanation of treatment choices at www.neuroendocrinecancer.org.uk

You can also find useful information at McMillan www.macmillan.org.uk

All cases are discussed at the regular multi-disciplinary team (MDT) meetings to decide on the best treatment plan.

Who’ll be involved in my care?

There are many different members of staff involved in your care. Including:

Clinical Oncologists

Doctors specialising in the treatment of cancer involving drug treatments and radiotherapy

Professor Nick Reed
Dr David McIntosh
Dr Amy Martin

Neuroendocrine Tumour Clinical Nurse Specialists

Provide information, advice and support to you as you go through treatment and direct you to help from other sources if needed eg: benefits

Irene Wotherspoon 0141 301 7261
Olivia Beattie 0141 301 7261

IV Chemotherapy Nurses

The Chemotherapy Nurses give chemotherapy in out-patient chemotherapy units and on wards.
Assess you for treatment so you only need to see medical staff at set times or if any problems arise.